Kids with Rare Genetic Conditions

An Ordinary Day displays unforgettable photographs set against intimate conversations, documenting the lives of 27 children living with rare genetic conditions.

Readers will fall in love with these children, share in their struggles and victories, and celebrate the life-affirming spirit captured in every image. The book invites us to connect with kids like Ethan, a nonverbal 7-year-old who learns to sign to communicate his needs and 5-year-old Madison who has taken her first steps after years of crawling. Tasks often taken for granted, are profound triumphs for these kids.


The every day moments captured in An Ordinary Day inspire awareness and empathy, while highlighting the commonalities between families with rare genetic conditions, and more deeply between us all.  


"Best Photo & Art Book"


Cover of After That Day - STories of Epilepsy

AFTER THAT DAY - Stories of Epilepsy

After That Day: Stories of Epilepsy provides forty- five personal accounts of people who have been forever changed. These stories offer a challenging look at survival, and in many cases, a cure.

One out of every twenty-six people will have epilepsy in their lifetime. It can come when you least expect it, and no one is exempt from its grasp.

This beautiful, rich color, hardback book contains personal stories as told by the patients, family members, and caregivers. Each story features amazing, introspective photos which compliment and tell the story as well as the written words. 

Visit Sofie's Journey for more information.

Holcoaust Survivor Benjamin Haberberg


​When World War II broke out, Benjamin Haberberg was about one and a half and was living in Warsaw at 10 Maryanska Street with his parents, Dora and Raphael Haberberg. His extended family lived on another floor. It was 1940 and it was going to be a long five years.

Benjamin’s father disappeared within the first year of the war. Throughout the remaining years, Dora and her son did whatever they could to survive. They pretended to be devout Polish Catholics, they claimed new identities, they lived with Nazis. They tried not to starve, be killed, bombed, found out, or recognized. It was all about survival. You had to be a little smarter, a little luckier, to survive.Thankfully they did. 


Benjamins Audio Interview.

UNDER MY SKIN - Transgender Project

​UNDER MY SKIN  is a multimedia experience that aims to share the stories of transgender and gender-diverse youth through still and moving pictures. Of the children who have already been photographed and interviewed, each one conveyed a similar version of the same idea: they are all people.


This project aims to center that idea by looking at the lived experiences of trans children. While many creative pieces today tend to focus on the trauma of such experiences, this project breaks that narrative by presenting the participants as they want to be seen. The focus of this piece is the people, their stories, and what they want to share with the world.

Please fill out the contact form if you are interested in being part of this project.


Karen Haberberg has published three books and is working on a fourth project titled, Under My Skin which will be a traveling interactive exhibitions.  Her portrait photographer and healthcare photography is highly appraised. View the ABOUT page to view the media coverage.

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All Images Copyright © 2005 - 2020 Karen Haberberg. All rights reserved