Cassie

Marfan syndrome is a genetic disorder that affects the body’s connective tissue, causing features such as long limbs, a curved spine, a tall and thin body type, and a dilated aortic root, which can be fatal if not diagnosed in time.

Cassie, 9 years old, has had six surgeries, including heart surgery, three spinal surgeries, g-tube placement, and a fix of her broken femur. Due to the metal rods along her spine, which correct her scoliosis, she cannot bend her back. Cassie loves to sing, act, swim, and play Minecraft.