AN ORDINARY DAY
KIDS WITH RARE CONDITIONS
An Ordinary Day documents the personal lives of courageous children living with rare genetic conditions and the families who love and support them at all costs. While 1 in 10 Americans lives with a rare genetic condition, these realities are often overlooked. This book brings compassionate attention to lives shaped by resilience, care, and perseverance.
Darus, Phelan-McDermid Syndrome (5 Images)
Addie, Related Intellectual Disability Syndrome (6 Images)
Kelly, PACS1 Syndrome (7 Images)
Wyatt (3 Images)
Clara (6 Images)
Louis, Ehlers-Danlos Syndrome (6 Images)
Maddy, Beta-propeller protein-associated neurodegeneration (BPAN) (3 Images)
Miriam & Mohammad, NGLY1 (8 images)
Ethan, Angelman Syndrome (7 Images)
Ian, MCAP & PMG (7 Images)
Sean, ALD, X-linked Adrenoleukodystrophy (7 Images)
Quinn, Polymicrogyria (2 Images)
Cassie, Marfan Syndrome (5 Images)
Emily, Sanfilippo Syndrome (7 Images)
Ava, SATB2-Associated Syndrome (4 Images)
Gianna, 22q11.2 Deletion Syndrome (4 Images)
Brian, Ataxia -Telengiectasia (4 Images)
Josie, FoxG1 (4 Images)
Zoey, Chromosome Deletion Syndrome of the 2Q32 Chromosome (7 Images)
Jonathan, Mowat-Wilson Syndrome (4 Images)
Nico, Evans Syndrome (2 Images)
Mackenzie, Tay Sachs (4 Images)
Jamesy, Duchene Muscular Dystrophy (4 Images)
Brynn, Rett Syndrome (5 Images)
Daniel, Glass Syndrome (3 Images)
Alexandra & Jonna, Gastroparesis, Crohns & Rheumatoid Arthritis (6 Images)
