Evans Syndrome
Nico
Though Nico, 4, often appears to be in perfect health, he is one of less than 1,000 children around the world suffering from Evans syndrome, Idiopathic thrombocytopenic purpura, and Neutropenia, an autoimmune disorder. Sickness as mild as a common cold frequently escalates, requiring Nico to be hospitalized. Because his immune system is so weak, Nico is not able to be in many public places, including school. Evans syndrome is not heavily researched and the cause is still unknown. Nico loves toys, arts and crafts, baking, the outdoors, and dreams of owning a zoo one day. His latest interest has been science, as he wants to make medicine for sick people.
Unless my son is yellowish, with bags under his eyes, or has petechiae, which are the dots on his body, you would look at my child and say, "You have a healthy child," and you would think they were crazy, and they’re not crazy because the blood tests don’t lie.
– Karen, Nico’s mother