Ian

According to Ian’s dad it was, “Pretty much game on as soon as he was born.” Ian, 5, required full-time oxygen for the first three years of his life and was later diagnosed with Megalencephaly-capillary malformation syndrome [MCAP], and Polymicrogyria [PMG]. Symptoms vary from patient to patient but for Ian it includes a large head, body asymmetry, developmental delays, soft skin which gets red or blue from change in temperature, seizures, and low muscle tone. Ian loves books, sensory items like beans and rocks, Thomas the train, and singing with his mom.